Len Johnrose had a very successful professional football career, which spanned nearly 20 years. He made around 500 first-team appearances for clubs such as Blackburn Rovers, Swansea City, Burnley and Bury FC.

What is MND?

According to the MND Association, motor neurone disease (MND) describes a group of diseases that affect the nerves (motor neurones) in the brain spinal cord that tell your muscles what to do.

With MND, messages from the motor neurones gradually stop reaching the muscles. This leads the muscles to weaken, stiffen and waste. MND can affect how you walk, talk, eat, drink and breathe. Some people also experience changes to their thinking and behaviour. However, MND affects everyone differently. Not all symptoms will affect everyone, or in the same order. Symptoms also progress at varying speeds, which makes the course of the disease difficult to predict.

MND is life-shortening and there is NO CURE. Although the disease will progress, symptoms can be managed to help achieve the best possible quality of life.

There is a 1 in 300 risk of getting MND across a lifetime. It can affect adults of any age, but is more likely to affect people over 50.

MND affects up to 5,000 adults in the UK at any one time. As this is not a common disease, general health and social care professionals may not see many cases of MND. This means it is important to seek out specialists who have appropriate experience in its treatment and care – usually with referral to neurological services.

For more information,  click here to visit the MND Association website.

How you can help.

The Len Johnrose trust is actively working alongside the MND Association to raise funds – vital for research and support those living with the MND.

The Central and East Lancs Branch of the MNDA are collaborating with the Trust, and together they are hosting their inaugural Masquerade Ball at the Winter Gardens, Blackpool.

There are many ways in which you can support this, such as: buying tickets/tables, sponsoring the event or volunteering to help sell tickets. 

Click here for more details.

 

Other ways to help

Visit the MND website for other ways in which you can help the Association

 

“Any support you can give today; through volunteering your time and skills, fundraising in so many creative ways or by contributing to our appeals and campaigns will help ensure our work continues across our three priorities of improving care, funding research and raising awareness of just how devastating MND is, both now and for the future."

Sally Light, chief executive, MND Association

For the MND Association website click here 

Our Team

In 2018, Dean West and Paul Turley set up the Len Johnrose Trust.

Together, they assist in organising and coordinating events and functions, raising funds for Len and the MND Association.

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Dean West

Trustee

 

Former professional footballer, who met Len in 1995. They were teammates at Bury FC and Burnley FC.

Dean worked briefly as football coach, and now works as a football scout.

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Paul Turley

Trustee

 

Paul and Len met whilst school in 1981.

Paul recently retired from the police force after serving 30 years, and now works as a football scout.